Psychosocial experiences of caregivers of children with intellectual disability in Limpopo Province, South Africa

Abstract

Research on caring for a person with an intellectual disability (ID) is well documented in the Western context but not in South Africa. The present study explored the lived experiences of caregivers caring for children with ID in the African context of Limpopo Province. The present study used a phenomenological design. Five female participants were recruited through purposive sampling. Data was collected via focus group interviews and was analysed thematically. The findings of the study revealed four themes namely positive experiences of caregiving, negative experiences of caregiving, common issues shared by the caregivers, and their coping strategies. This study concluded that the caregivers experienced a wide range of psychosocial processes that include pain, lack of support, strained relationships and limited engagement in social activities. However, through their religious beliefs, these caregivers manage to cope with the challenges of caring for children with ID. Recommendations and implications for future research on intellectual disability and caregiving are highlighted.